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SUMMARY:Rare Disease Day
DESCRIPTION:RARE DISEASE DAY IS TAKING PLACE ON 28th FEBRUARY 2026 \nDid you know that there are 3.5 million people in the UK living with a rare condition? And that 1 in 17 people will be affected by a rare condition at some point in their lives? \nRare Disease Day is a globally coordinated movement dedicated to rare diseases\, striving for equity in social opportunities\, healthcare\, and access to diagnosis and therapies for people living with a rare disease. \nSince its creation in 2008\, Rare Disease Day has played a crucial role in building an international rare disease community—multi-disease\, global\, and diverse\, yet united in purpose. \nThough Rare Disease Day is patient-led\, everyone—including individuals\, families\, caregivers\, healthcare professionals\, researchers\, clinicians\, policymakers\, industry representatives\, and the general public—can participate in raising awareness and taking action for this vulnerable population in urgent need of attention. \nBy spreading the word on social media\, organising events\, illuminating buildings\, monuments\, and homes\, sharing experiences online and with friends\, calling on policymakers\, and shining a light on people living with a rare disease\, we collectively aim to change and improve the lives of 300 million people worldwide. \nWhy not get involved and share your story ! Write a blog\, post your story on Social Media\, speak at an event or fundraise for your cause. \n#RareDiseaseDay #StoriesBehindTheStats #RareConditions #GeneticConditions \nSource: Rare Disease Day 2026
URL:https://adoddle.org/events-calendar/rare-disease-day/
CATEGORIES:Awareness Day,National,UK
ATTACH;FMTTYPE=image/png:https://adoddle.org/wp-content/uploads/2024/01/Rare-Disease-Day-1.png
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