Charity (no. SC049728)
Affa Sair - Self Help Chronic Pain Charity
"To provide help and share experiences for chronic pain sufferers."
Affa Sair (Scots for “Awfully Sore”), is based in the North East of Scotland and is open to chronic pain sufferers and their families/partners from anywhere in Scotland and beyond. We started as a closed Facebook Group, formed by chronic pain sufferer Chris Bridgeford from Forres in Moray in 2015, in an attempt to break the isolation of chronic pain sufferers in the north east of Scotland.
In 2019 the charity - Affa Sair (SCIO) SC049728 was established, specifically to assist in the furtherance of knowledge about chronic pain conditions and to provide a strong presence for chronic pain sufferers and to educate the public, politicians, media, organisations and NHS Staff on the plight and needs of chronic pain sufferers.
We are running a self-management social prescribing scheme from September 2023 to September 2024 together with Maryhill Medical Practice in Elgin, and Culbin and Varis Practices in Forres. The scheme is the first chronic pain-specific social prescribing scheme in Scotland. We are working with the quality improvement and assurance team (QIAT) at NHS Grampian to run a service evaluation so they can objectively assess how impactful social prescribing is in chronic pain patients.
Each practice will refer 50 patients to the scheme which will give patients the opportunity to take part in socially proscribed projects designed to help the patient with the difficulties of living with chronic pain. This scheme will provide access to hydrotherapy sessions, art therapy, guided exercise classes, allotment access, book clubs, walking groups, guided meditations and other social events free-of-charge.
We are always interested to hear from people who live with chronic pain or are carers of someone living with chronic pain. As we cover a large area of Scotland now it would be most helpful for people with IT and social media skills to voluntarily help us carry out events and services in areas outwith Moray.
Affa Sair has taken part in the numerous consultations, surveys and projects including:
University of Oxford – Cicero Trial
University of Aberdeen – Digital tool to manage persistent pain
Teesside University - The Role of Sleep Disturbance in Chronic Pain
Glasgow School of Art Design School Projects
2022
Painstorm – University of Aberdeen - October 2022
Royal College of Chiropractors “Communicating With Patients in Pain” Webinar
University of Glasgow - Ethnography of Multimorbidity and Treatment Burden
University of Glasgow - Managing Multiple Medicines Survey,
Glasgow School of Art Design School Projects
2021
European Pain Federation Virtual Education Summit
Scottish Government Consultation on new Adult Disability Payment
National Advisory Committee on Chronic Pain
Pain Management Remote Healthcare Pathway – Clinical Advisory Group
The Alliance - My World, My Health Workshops
Glasgow School of Art Design School Projects
2020
Pain Management Programme with Dr Joseph Parsons University of Manchester
The Health and Social Care Alliance - Chronic Pain Reference Group
Primary & Secondary Care chronic pain services in Moray and the way forward
2019
New World Health Organisation ICD-11 classification of chronic pain Malberg University
Scottish Access Collaborative Chronic Pain Report
SIGN Public Performing Network
NHS Grampian Public Health Directorate on Pain Management Resources
2018
Work and Pensions Minister re PIP Assessments
Submissions to the Scottish Health Committee on Clinical Governance of NHS Boards
Scottish Public Health Network Report on Adult Chronic Pain Needs Assessment
2017
Meeting with Scottish Public Health Minister
ISD Chronic Pain Waiting Times Consultation
2016
Glasgow School of Art Design Innovation School - The Language of Pain Project
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