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Cavernoma Awareness Day

August 21

A white background with red shapes and the text "Cavernoma Awareness Day" in red. The design features smooth, abstract red forms on the left and centre, resembling drops or organic blood shapes.

Cavernoma Awareness Day 2024 is on 21st August and aims to increase knowledge of how to spot its symptoms, understand its causes, and spread more awareness across your friend groups and workplace organisations.

In order to assist in raising the profile surrounding this condition, it’s important to have as much information at hand as possible. Here’s what you need to know about Cavernoma Awareness Day to do your part and participate this year.

What is Cavernoma?

Cavernoma refers to groups of abnormal blood vessels that form in clusters in the spinal cord and brain. Cavernomas contain blood which travels slowly through these vessels, usually clotting. The look and shape of a Cavernoma resembles a raspberry and can range from a few millimetres to a few centimetres in size.

What are the Symptoms of Cavernoma?

Spotting the signs and symptoms of Cavernoma can be difficult as they tend to vary from person to person. The size of the Cavernoma and its location can also cause these symptoms to vary. Generally speaking, these are some of the most notable Cavernoma symptoms:

  • Seizures or severely painful headaches
  • Issues with memory and concentration
  • Issues with keeping your balance
  • Tinnitus and difficulty hearing
  • Blurred or double vision
  • Dizziness and fatigue
  • Drooping in the face
  • Difficulty talking
  • Numbness

How is Cavernoma Treated?

For some cases, Cavernoma will predominantly be treated and controlled with medications, especially in the case of extreme headaches and seizures. In more extreme cases where there’s a risk of haemorrhage and heavy bleeding, further steps will most likely be taken in the form of surgical treatment or radiation in the event of surgery being deemed too dangerous.

However, it’s important to remember that each Cavernoma case will be unique, and that treatment methods will vary depending on several different factors.

Whether you or someone you know may have #Cavernoma, or you’re just eager to help raise as much awareness as possible, sharing this knowledge is the best way to do your part this year.


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Homepage – Cavernoma Alliance UK (CAUK)


August 21
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